The University of Manchester
School of
Psychological Sciences
Participant Information Sheet
The role of
pride in Anorexia Nervosa
My name is Cintia Faija,
I am studying for a PhD at The University of Manchester and I would like to
kindly invite you to take part in my research study. I am supported by a
research team of clinical psychologists, Dr. John Fox, Dr. Patricia Gooding and
Dr. Stephanie Tierney (academic supervisors) from the University of Manchester.
Please, read the following information about the study carefully, ask
me any questions you like and take
the time to decide whether or not you wish to take part.
What is the purpose of the
study?
I am interested in understanding the role of pride among women with
anorexia nervosa. Hopefully, the findings from the study will help health care
professionals, working in the eating disorders field, to have a better
understanding of the disorder and contribute to the development of more
effective treatments.
Why have I been invited to
take part in this study?
You have been invited
to take part because you are a female aged 18 or over, recovered from Anorexia
Nervosa for at least the last 12 months and you are not currently undergoing
treatment for Anorexia Nervosa or any other Eating Disorder.
Do I have to take part?
No, you do not have to take part in the study if you do not want to.
Taking part in the research is voluntary; this means it is completely up to you
to decide whether or not to join the study. If you decide to take part and sign
the consent form but change your mind later, you are free to withdraw at any point during the study without
giving a reason.
What will participation involve?
If you agree to take part in the study, you will be asked to sign an
online consent form. After that, you will be asked to answer some on line questions
about you (e.g. gender, age, etc.) and then, fill in 2 questionnaires. Finally,
you could be contacted to be invited to have a one to one interview with myself
by phone or at your home, pending on your choice of preference and location.
The interview will be audio recorded for future transcription and analysis. All
the information you provide for the study, online and face to face, will be
treated confidentially and anonymously. Anonymised
quotations from the interview could be used to illustrate findings in future
reports or research publications.
What will I have to do?
Your involvement in
the study will consist of a 30 minutes filling in online questions about your current eating habits, feelings
and beliefs; and an interview that will last 60 minutes, which can be broken up into sessions if
required. In the interview I will ask
you some questions to learn about your personal experience as recovered from
anorexia nervosa and your feelings of pride.
What are the possible disadvantages and risks of taking part?
It is anticipated that there are no direct risks in
taking part in this research study. Although it is unlikely, it is possible
that you may feel some upset answering some online questions or during the
interview. If this happens to you when you are filling in the online questions
you may stop and access support contacting your GP. If you get distressed
during the interview, I would stop the interview and offer support, if your
distress increased, I would seek additional support for you contacting your GP.
What are the possible benefits of taking part?
There may be no direct benefits to you as a result of
participating in the study. That said, in case the interview takes place this
may offer you an opportunity to express yourself in a free way and you could
find being listened to carefully and with total interest to you and your
personal experience, beneficial.
The information from this study could help to improve
understanding of the role of pride in women with anorexia nervosa and may contribute
to the development of more effective
clinical interventions in the future.
Will my taking part in the study be kept confidential?
What will be done to ensure confidentiality?
Yes, all the
information you give will be kept strictly confidential and will not be shown
to, or shared with anyone outside of the research team. All information will be
anonymised using a coding system. This means your
identity will remain private. All data will be stored securely at the
University of Manchester. Audio records of the interview will be destroyed at
the end of the study. Direct quotes may be used in the write-up of the study,
but will be used in such a way so as not to reveal the identity of individuals.
Data from the study will be destroyed after 5 years after the last publication of
the study to follow recommended good practice guidelines for clinical research.
What will happen if I do not want to carry on with the study?
You can withdraw from
the study completely at any time without giving a reason. No further data will
be collected from the moment you withdraw.
What if I have any questions?
If you have any questions
or you have a concern about any aspect of the study, you can speak to me or to
any of my 3 supervisors. You can contact me on 0161 306 0444 or by email at cintia.faija@postgrad.manchester.ac.uk. You can contact Dr. John Fox at john.fox@manchester.ac.uk, Dr. Patricia Gooding at patricia.a.gooding@manchester.ac.uk and Dr. Stephanie Tierney at stephanie.tierney@manchester.ac.uk .
What if there is a problem?
It is unlikely that
anything would go wrong. But, if there is a problem, you may contact me in the
first instance or you can contact any of my supervisors. Any complaint you have
about the study will be resolved you promptly; and information will be provided
by phone or in writing to inform you of how the complaint has been addressed.
If I and my supervisors are unable to resolve your concern and you remain
unhappy, or you do not want to contact none of us directly and you may wish to
make a complain regarding the study, please contact the University Research
Practice and Governance Co-ordinator on 01612757583 /
01612758093 or by email to research-governance@manchester.ac.uk . Otherwise, you can contact the National Health Service Patient Advice
and Liaison Service (NHS-PALS), details of local PALS offices can be found at www.pals.nhs.uk .
The University of
Manchester is providing insurance cover for this research; in the event that
something does go wrong as a result of taking part in this research, you may
have grounds for claiming compensation.
What will happen to the results of the research study?
Hopefully, this
research will be later published in a scientific journal. I would like to
highlight once again that you will not be identified in any report/publication
related to this study. A summary report of the findings of the study will be
provided to B-EAT. If you are interested to have a copy of the findings and/or
a copy of the final published article, you can contact me directly and I will
be pleased to send them to you.
Who is organizing and funding the research?
My PhD in Psychology
is funded and sponsored by The School of Psychological Sciences of The
University of Manchester.
Who has reviewed the study?
The study has been
reviewed by The University of Manchester. In addition, this research has been reviewed
by the National Research Ethics Service Committee North West Preston.
Further information
The Lead Investigator
for this research project is myself, Cintia Faija. Dr. John Fox
(Clinical Psychologist and Lecture in Clinical Psychology), Dr. Patricia
Gooding (Senior Lecturer in Psychology) and Dr. Stephanie Tierney (Research
Fellow) are providing supervision for the research.
If you have any
questions or require any additional information please do not hesitate to
contact me at:
Cintia Faija
Lead Investigator
School of Psychological Sciences - The
University of Manchester
Email: cintia.faija@postgrad.manchester.ac.uk
Telephone number: 0161 306 0444
If you are interested in taking part, please follow
this link:
https://apps.mhs.manchester.ac.uk/surveys//TakeSurvey.aspx?SurveyID=l6LJ5825